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Our story

We found out at 17 weeks that our unborn son had critical aortic stenosis. His aorta and left ventricle had not formed correctly. We were given the worst news we ever could have imagined: our child was not going to live. It was likely he was going to pass away before birth. If he made it to birth, his life would be short and attempts at saving him and intervening with heroic medical measures would be futile.

I began this blog at 21 weeks. I wanted to document our journey, our struggles and provide some support for those going through the process of making final preparations for a baby they had yet to meet.